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Living Positive: An Interview with Justin B. Smith

Published March 19, 2009
Justin Smith

Born and raised in Silver Spring, Maryland, Mr. Justin B Smith left the area in 1999 to enter the United States Air Force. After 4 years of honorable service, Smith left and came back to the Washington, D.C. area. In 2006, he was diagnosed with HIV and, in July 2008, Smith went on HIV medications, including Norvir, Rayetez, and Truvada. Smith presently resides with his partner in Laurel, Maryland. His CD4 count, as of March 7, 2009, was 431 with a Viral Load that is undetectable. He recently earned his AA in Communications and will pursue his Bachelor’s in Journalism.
mith spoke with Gay Life about how he became involved in HIV awareness and prevention efforts, his motivation for writing and producing videos about his personal journey as a young, black, HIV-positive gay male and overcoming barriers to more successful HIV-prevention strategies.


Why and how did you become active in promoting HIV awareness and prevention?

I became active in promoting awareness and prevention because of my own diagnosis. I also started because of my experiences when I worked with Us Helping Us People Into Living Inc. in DC. I was HIV-negative at the time and it was 2004. In 2007, a lot of people I knew started disappearing. I didn’t understand. One time I was dating this guy. He all of a sudden stopped calling me. I didn’t know what I did wrong. I called and called to see what was up with him. Still no answer. Then, about 3 weeks later, I was at the bar and another friend of mine. Terry told me that he had passed away. That night Terry told me that the guy I was dating was HIV-positive, and had renal kidney failure. This crushed me. Then, friends started dying one by one.   I felt like something needed to be done. I needed to find out why…why my friends were dying. It was killing me inside to see young black gay men my age dying…and dying of AIDS. 
 
You have both an online journal and video project. What motivated you to begin these projects?


I was infected with HIV in 2005 and diagnosed in 2006. I began to go the doctor at Whitman Walker Clinic in Washington DC regularly. Then, I moved to Baltimore. My body started going through some changes. I was more tired than usual. I changed doctors and began going to the Chase Brexton Clinic in Mt. Vernon. My doctor told me that my viral load was 261 and I might want to go on meds. I started doing more and more research on HIV medications. I noticed that there weren’t a lot of resources out there documenting what people were going through on HIV medications. As I thought more, I realized that this also could be done using audio and visual devices. I wanted to have a raw and candid approach to HIV/AIDS so people could see and hear what really happens, what could happen and what will happen. It seems more and more young people are being infected with HIV/AIDS whether they are gay, straight, bi, black, white, Hispanic/Latino or Asian. I wondered if young people were more receptive to watching than reading material, so with the arrival of YouTube.com I decided to invent Justin’s HIV Journal.


You’re a young black man living with HIV. What have you struggled most with?

It seems that there are a lot of struggles when you are black, gay, young and HIV-positive. I can’t mention just one. One struggle is that when I was single, I felt that nobody would love me, or nobody could love me. Another struggle is stressing yourself out just because you have this disease that continuously will throw surprises at your body left and right. Changing my life habits was hard as well. 

I personally think that people living with HIV, especially young black gay men, are most struggling with a lack of self esteem. The lack of feeling like they are loved. I don’t think a lot of people understand how hard it is being the minority of a minority, BUT we all go through a lot of the same things regardless of race or sexual orientation. I think a lot of us sometimes feel shunned because of our church’s view of who we are, because of the lack of support from the world and because of the lack of self worth a lot of us suffer from. What’s sad is that this is not just in Baltimore, the state of Maryland, or the U.S. This is around the world. We need to all love and support one another and people with HIV need more support than most. 

 
Despite the alarming rates of HIV/AIDS among African-American MSM, targeted awareness and prevention efforts remain scarce. What do you see as some of the primary barriers?

One of the primary barriers is lack of funding. A lot of our programs have suffered economic woes because of many years of under-funding. 


I also think a lot of messages that are used for preventive purposes have been used over and over again. I don’t think it’s getting through to young people. The youth of today haven’t seen the people who were dropping like flies in the 1980’s or 1990’s. Some young people believe that if they become infected, all they have to do is take a couple of pills and they will be fine and not have to worry about anything, which is untrue. I believe preventive measure have to be changed and quickly. We need something in their face, something that they can relate too.

 
You often address the stigma surrounding HIV/AIDS in your writing. What steps can individuals and communities take to work towards erasing this stigma and its harmful effects?

I think the first thing that needs to be done in the community is education. Our communities need to learn how to embrace people with HIV/AIDS and to learn not to be afraid of them. The community needs to know the basic reality that people cannot get HIV/AIDS just by doing everyday activities. 

Individuals need to be honest. Being honest about your status gives you more power than you know and it gives others the power to know that it is ok to be open and honest about your HIV status. The more you are open, the more others will be open about their status. Also, when people start becoming honest about their status, some of their unsafe behaviors may start to dissipate. 

Going back to communities, I need to say these are your fathers, mothers, brothers, sisters and children that are dying of this disease. Without your help and support, they will surely die. 


 

Justin’s HIV Journal:  www.justinbsmith.com  & www.youtube.com/jsmithco98 .


Justin B Smith’s FACEBOOK Page: www.facebook.com/people/Justin-B-Smith/763732081

Justin B Smith’s MYSPACE Page:   www.myspace.com/babyboyjustin

Comments

3 comment(s) on this page. Add your own comment below.

RODNEY BENTON
September 11, 2009 4:52pm [ 1 ]

HI JUSTIN I AM DEAF AND DISABELD. MY ANE IS RODNEY.I AM FRM ATLANTA .. I AM HIV + IN 2007 I FEEL BETTER MY HEALTH. ONE YRS 8 MONTH FOR HIV +. I HAVE FEW MEED PILL.... I REALLY VERY INTERSTD STORY. I ONLY LISTEN STORY BE CAREFUL HIV..PLEASE SEND ME SOON..

LOVE
marco perira
March 7, 2010 1:36pm [ 2 ]

My name is Marco Pereira and i went to El Salvador to get to know better this treatment that is going on for years and we do not know about it. I went there to boost my immune system and it is really great. It could help someone with AIDS/HIV+, cancer and more. Feel free to ask me few question and i feel like I have to tell the gay community about it. Marco

Subject: ABOUT THE TREATMENT Date: Thu, 18 Feb 2010 21:17:20 +0000

Well, when we got here it was a really bit not sure what could or not happen. The airport was pack and people were smiling and looking to get work from us: cab, etc. The city is 40 minutes away from the airport but the trraveling was really nice and full of nature.

FIRST DAY - On Monday I got the first shot around 4 pm and they did not asked me for money, just to fill it up some papers or so. It was IV injection and I did not feel anything at all, just the needle going inside the body. For real, after few hours my body felt better. I slept well and got a little bit more energy for sure.

The main doctor, Dr Bertacchini stayed with me all the day, for almost 2 hours, asking me questions, getting to know me, etc. He chatted a lot with the other doctor, Dr. Miguel.

We were speaking Spanish and English all the time with some help from the translator for Ken. I guess I did good with my Spanish, they think that was fine. Both doctors told me DO NOT GO FOR CHEMO, it will no help you at all. At the same time came to my memory information from the book that I am reading now KNOCKOUT FROM SUMMER ... YOU HAD TO READ IT FOR REAL. Many studies proved that chemo only helps in few cases, and besides if chemo was really the best results, why more people dye from and why they get sicker after?

SECOND DAY - few limpho nodule were smaller and the pain on my neck was 40% less and I was able to move my head better. I felt much normal than in few years, really normal. The doctors confirmed it touching my body and feeling the nodules. We had a blood work done and RX. The results should be next day. For real the swallow on my groin was feeling better also.

THIRD DAY - well, what we should call miracle using man brain? Few limpho nodules were completely gone for real and others 70 % smaller than before. Besides my energy went up and I felt like I was the Marco that I always knew it: ready for work, party, dance, etc. I was able to dance at the night club without fear to hurt or injury my self. The pain on my neck was gone and smaller. Can not ask for more for now, it was just the third injection we need to give time for the medication to work, right? AND IT IS NATURAL BTW, NO CHEMO. The blood work was fine and the RX perfect.

FOURTH DAY - Thing is getting better and better and naturally thank God, that created the nature and let people be smart to use and cure stuff or build something. You should try this medication for real, soon we will have it in the USA and you will be able to bust your life. The swallowing on my groin is almost gone and my penis looks better. I guess I forgot to mention that the skin cancer started right there. The skin is more pink and the region is looking better. I am so glade I came here. It was a tough decision to play with the unknowing since the doctors always want to put chemical in our bodies, even so when they know that it could kill as. I toke LEVAQUIN and it was hard on me and nobody told me about the side effects: i could be with the damages on my knees for ever.

FIFTH DAY - i got another IV and and my body is really great. i do not feel like this for almost 2 1/2. I will take with me medication for home treatment and after 30 days, I have to send to them some blood work so we can continue the treatment according with my health.

BTW should we believe that NATURE CAN CURE OR NOT? Or should we stop to use the nature for everything else? Well we are not going to have buildings for real or marble, etc. Nature can heal, we need to find the way. It is out there and we need to open our eyes and stop to feed the LABS and save people without kill them with chemicals.

Marco

Estephan
May 6, 2010 8:58am [ 3 ]

Hello Justin, this is so open from you and I really appreciate your honesty. A family member of mine by the name of Sagali Patrick Kahozi died in 2007 from HIV/AIDS and renal kidney failure. It was the most traumatic experience of my life because noone in the family knew he was sick to death and no one knew he had HIV/AIDS. The silence surrounding HIV/AIDS in the gay community is really scary and I feel by reading your story that you knew Patrick too. Thanks for being so open about this, we all wish Patrick had the same courage as you.

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